Epilepsy Attacks aka Fits

Mikaail has been having what I thought was difficulty burping.  It seems like after a baby drinks milk, the baby needs to be gently tapped on its back to help the baby burp.  His so-called difficulty burping are becoming more regular and sometimes about 4 – 5 times a day!  The moment he burps or he gives out a loud cough, he seems ok although sometimes he vomits his food.

We took pictures of when he has the attacks and his neurologist said that these are the epileptic attacks.    He will be holding his left temple and his eyes fixated, his stiff right hand is turned towards his chest, crammed like.  His left leg also trembles.

He showed us this picture from one of his medical books to confirm that it is not a burp and is in fact an epilepsy attack.

Previously when he has fits, we just need to turn him to his side and he will come out it.  Nowadays, his epileptic attack is so irregular that it can happen at any time, sometimes when he has his meals.  His neurologist suggestion is that we admit Mikaail into the hospital for observation and then he can either recommend other medication or adjust Mikaail's existing medication.

I am reluctant to admit Mikaail as so far we have not seen any concrete solution from the doctors' suggestion.  It's like a trial and error and it's not a guinea pig or even a mouse!  It's my son and I've lost the quality of life for him.

Mikaail eating rose apple

While I was sitting in front of Mikaail updating my blog, he suddenly reached out his hand and touched the fruits in front of him and asked me what it was.  I told him it's called rose apple (jambu air) and asked him to have a bite.  After his first bite, he said it's nice and he eventually ate about 1/3 of the fruit.  He usually eat fruits after some persuasion.  This time was more of an impromptu action.



Wish Come True

It was a rather spectacular event I must say of the Make-A-Wish Foundation party for the special needs children.  Each of the child has their own personalised board as shown below.

If I could really wish for Mikaail, it would be for him to at least be able to see again.  He lost his vision, I believe, due to negligence or insufficient medical care rendered to him by the doctors and/or surgeon during his initial operation due to haemorrage.

Despite the medical professionals assuring us that the eye nerve was "miles away", Mikaail still lost his vision!  What do they have to say?  Nothing useful and comforting!!

There were lots of food provided for all the guests.  Mikaail enjoyed his spaghetti with tomato sauce, french fries, chicken nuggets, sweet & sour fish slices.  I had seafood fried rice, fried baby siow pai chai, sweet & sour fish slices too.  

Pre-Make A Wish Foundation Party

Mikaail is all excited about this party and also told us he wanted to wear a blue shirt.  Yesterday, aunty Yaya went to buy him his shirt - a little big though as the shop didnt have the shirt in his size.

A couple of days ago, he asked who are coming to his party then he also asked if a couple of his cousins are coming.  I told him the who's who on his guest list excluding him - just to tease him.  Then he said he is sad - put his head down and show his sad face.  He is quite a "drama" fella then I told him I was only teasing him and instantly he is happy again!

Gift from NUS Students' Community Service Club

Mikaail received his gift from Shai, a student of NUS Students' Community Service Club on Tuesday, 11 October. As usual, he will usually bring his gifts home to be opened and shared with mummy and daddy.

About a month or so ago, we received a note from the school asking what we would like for him and we opted for shorts.  Understand that these gifts would be paid for by the students themselves.

There was a small party held and the

Class photo taken on Children's Day Celebration

Mikaail playing Angry Bird game, assisted by Geylang United player

Playing game - assisted by Geylang United player

Shower

A busy weekend as always.  A very hot day and showered him to cool himself down a bit.  Mikaail will usually help by scrubbing himself a bit.  The commode gets rather slippery and since he cant balance himself, he got worried that he might fall into the hole on the commode.

I literally just realised that I should have covered up the hole when he is having his shower and only lift off the cover when he is using the toilet!

Giving his face a washing with Garnier 3-in-1 face foam.  As a teenager, acne has started to surface on his face.

Shampooed his hair





Drying himself up after shower.