Mikaail was born in 1998. When he was born, he did not show any signs of abnormality and his apgar score was 9.
Anyway, when he was 3 months old, I noticed that he was not turning around like most babies do and he was not jumping on my lap when I held him up. I did some research on his behaviour and found that he may be going in the direction of cerebral palsy as there may be impairment in his physical development. I brought him to the pediatrician and was told that babies develop at different age and as he has no siblings, we should not judge him yet.
Anyway, he was diagnosed as a cerebral palsy child when he turned one. The neurologist told us that his condition is mild. Whatever the case, although it is mild, it is really disheartening as he is adorable and to have such a condition means he would not be able to enjoy life to its fullest. In a way, I had half expected it after doing research on his condition before he turned 1. He was developing at a much slower pace but is always a happy child. He easily gives his smile to any stranger.
He is now 10 years old. I'm not sure why but when he just turned 7, he had stroke. God took away his vision, his speech and movement. I still cant understand why God did what He did. No one could give me an answer. I must admit that I am still unable to come to terms with this. I had a lot of plans for him ie enrolling him in enrichment class, participate in activities with him. In short for him to enjoy his childhood but all this came to naught!
He is taken care of by my sister since he was a baby. With his current condition, she is the one who cares for him most of the time. She brings him to school and back as well as attends classes and therapies with him.
Mikaail was diagnosed as cerebral palsy child when he turned one year old. He had stroke at 7. Did stroke rob him of his vision and mobility? I used to think so but not anymore. Looking back I feel it was highly likely his vision was lost due to the mishandling by the so called medical professionals! A student of the Spastic Children Association in Pasir Ris. He attends classes daily, accompanied by Aunty Yaya. He has wonderful and supportive teachers and therapists.
Showing posts with label The early years. Show all posts
Showing posts with label The early years. Show all posts
Sunday, June 21, 2009
Tuesday, March 10, 2009
My Son, Mikaail
Mikaail was born in December 1998 after an almost fuss free pregnancy though I had to have lots of bed rest. I was away from work for almost 3 months prior to the delivery of Mikaail. He was due in January 1999 but when I went to my gynae for the routine check-up in December, the gynae told me that I would need to be operated on to take him out as he was in a breech position and would not be able to turn around to prepare for his arrival into the world on his own!
Actually I was quite happy to have the C-section as I wanted to be the first to hear his cries. I didnt want the hassle of him having to go through the birth channel and me having to bear the pain, etc, etc. But I was not prepared for this though so I was very worried. Anyway, when the gynae removed him from my womb and I heard his cries, I was so very happy!
The next few months was smooth sailing. I breast fed him, etc, and I felt like a damn cow! There was so much milk and at the same time, I felt very sticky each time I fed him and got really pissed that I stopped breast feeding him barely 6 weeks! I got in touch with the Breastfeeding support group but I just couldnt bring myself to continue feeding him without getting really fed up so to keep myself sane, I had to give up the idea. :(
When he turned 5 - 6 months old, I noticed that he did not bounce when I carried him by his arms and his legs on my thighs. I was a little worried as I was comparing his growth against a baby growth chart. Then I also noticed that when I left him on the bed, he would not turn nor would he crawl. I brought him to the pediatrician and she told me that I should not worry too much as each baby will grow at a different pace.
I searched for information on the internet but didnt get very much. I went to the library and found that babies who do not crawl nor much physical activities are heading in the direction of cerebral palsy. I was shocked but kept hoping that it would not be him but at one year old, he was diagnosed as cerebral palsy. What this means really is that I cant leave him to sit on his own without him toppling over unlike a normal baby! Of course I was devastated.
Doctor diagnosed him as having a mild cerebral palsy but if you think mild is ok - think again! What's worst is he is unable to fully use his 5 senses!
Actually I was quite happy to have the C-section as I wanted to be the first to hear his cries. I didnt want the hassle of him having to go through the birth channel and me having to bear the pain, etc, etc. But I was not prepared for this though so I was very worried. Anyway, when the gynae removed him from my womb and I heard his cries, I was so very happy!
The next few months was smooth sailing. I breast fed him, etc, and I felt like a damn cow! There was so much milk and at the same time, I felt very sticky each time I fed him and got really pissed that I stopped breast feeding him barely 6 weeks! I got in touch with the Breastfeeding support group but I just couldnt bring myself to continue feeding him without getting really fed up so to keep myself sane, I had to give up the idea. :(
When he turned 5 - 6 months old, I noticed that he did not bounce when I carried him by his arms and his legs on my thighs. I was a little worried as I was comparing his growth against a baby growth chart. Then I also noticed that when I left him on the bed, he would not turn nor would he crawl. I brought him to the pediatrician and she told me that I should not worry too much as each baby will grow at a different pace.
I searched for information on the internet but didnt get very much. I went to the library and found that babies who do not crawl nor much physical activities are heading in the direction of cerebral palsy. I was shocked but kept hoping that it would not be him but at one year old, he was diagnosed as cerebral palsy. What this means really is that I cant leave him to sit on his own without him toppling over unlike a normal baby! Of course I was devastated.
Doctor diagnosed him as having a mild cerebral palsy but if you think mild is ok - think again! What's worst is he is unable to fully use his 5 senses!
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