Sunday, August 15, 2010
Speech Therapy
Mikaail and his speech therapist, recorded by Aunt Yaya on 30 July 2010. This is to understand his biting pressure. He dont seem to be able to bite his food and possibly that's the reason he is unable to eat solid food.
Recovery: Step by Step
It's been almost 4 months since Mikaail's discharge from the hospital. He seemed to have gone backwards in the sense that he is re-learning to communicate as well as eat solids.
He is yet to be able to eat solid foods. He is still gathering his strength and here he is having his first bite of hashbrown on 9 August.
So far he eats soft food such as half boiled eggs, beancurd, congee, mashed potato with variation of the ingredients.
Today we brought him for some dim sum and he had some congee, egg beancurd, prawns, seafood horfun. He had very small portions like a couple of tablespoon of each. We are very happy to see him eating some solids as these are small improvement he's achieved.
Singapore National Pledge
See how patriotic Mikaail is. He is saying Singapore’s National Pledge during Singapore's 45th birthday celebration - the One Voice Hour 2010 on 9 August 2010.
In case you didn't realize why the pledge was set at 2010 - see the date. Actually I was also unaware when I first heard about the One Voice Hour. So you are not alone.
Here’s the extract of the pledge:
We, the citizens of Singapore,
pledge ourselves as one united people,
regardless of race, language or religion,
to build a democratic society
based on justice and equality
so as to achieve happiness, prosperity and
progress for our nation.
Sunday, August 1, 2010
Stroke in Children
"Most people believe that only older people suffer from strokes but this is not the case," said Eoin Redahan of The Stroke Association. "Around 5 strokes a week occur in children which is devastating for all the family concerned. The Association is carrying out the first ever survey to see how many children actually suffer from stroke each year in the UK. We believe it is between 250-450 a year."
Recently in Singapore, there was this child who was warded in the hospital when she was diagnosed with acute myocarditis - a rare condition that results in an inflamation of heart muscles. During her treatment, she suffered a stroke! According to the doctors, the stroke she suffered was serious as there were many white spots on her right brain.
Before my son had stroke at 7 years old, I have not heard of a child suffering from stroke. Seems that stroke is the top 10 killer in Singapore! Stroke robbed him of his vision as if being a cerebral palsy is not bad enough. His neurologist said his cerebral palsy was mild. Yah, right. Mild. So long its others, its ok!
Recently in Singapore, there was this child who was warded in the hospital when she was diagnosed with acute myocarditis - a rare condition that results in an inflamation of heart muscles. During her treatment, she suffered a stroke! According to the doctors, the stroke she suffered was serious as there were many white spots on her right brain.
Before my son had stroke at 7 years old, I have not heard of a child suffering from stroke. Seems that stroke is the top 10 killer in Singapore! Stroke robbed him of his vision as if being a cerebral palsy is not bad enough. His neurologist said his cerebral palsy was mild. Yah, right. Mild. So long its others, its ok!
What is CP?
Amongst my family, relatives and friends, none of them have ever seen children 
with Cerebral Palsy (CP) until Mikaail comes along. In fact, before Mikaail, I did not even know that such things can happen! Every other baby that I had seen before is so cute and normal. Mikaail was very cute as well and that is why it is super disappointing to see him not being able to enjoy his life to the fullest!
The doctor who diagnosed him told us that unlike a normal child where you can leave him/her on its own, you need to give full attention to the CP child or he will hurt himself.
People generally take things for granted. For children with CP, their first step or word is not easy as CP affects the regular things that children do.
Although I still feel "shortchanged" sometimes, as I didnt get to hear Mikaail's first proper word nor taking his first step on his own, I am now better able to understand him through the regular weekends that I spent with him. I'm not sure if it is a blessing though I cant imagine not having him by my side.
Some CP kids go around in wheelchairs and others
walk with the help of crutches or braces. Some may have their speech affected or the person might not be able to speak at all. Mikaail is wheelchair bound after he had stroke. Stroke at 7 is rarely heard of actually and stroke robbed him of his vision, speech and mobility. It's been 4 years now and I still cant understand what the medical team were thinking about when they wanted to save his life without the basic quality of life!
A person with CP has trouble controlling the muscles of the body. Our body moves because the brain tells the rest of the body exactly what to do and when to do it. Since CP affects the brain, a person with CP may not be able to walk, talk, eat, eat or play the way most normal children do. This depends greatly on the severity of the damage to the brain and which part of the brain is affected.
Although Cerebral Palsy (say: seh-ree-brel pawl-zee) is a condition that affects thousands of babies and children around the world each year, it is not contagious. You cant catch it from anyone who has cerebral palsy. Cerebral means it has something to do with the brain. Palsy refers to a weakness in a person's movement or the way the body is positioned.
with Cerebral Palsy (CP) until Mikaail comes along. In fact, before Mikaail, I did not even know that such things can happen! Every other baby that I had seen before is so cute and normal. Mikaail was very cute as well and that is why it is super disappointing to see him not being able to enjoy his life to the fullest!The doctor who diagnosed him told us that unlike a normal child where you can leave him/her on its own, you need to give full attention to the CP child or he will hurt himself.
People generally take things for granted. For children with CP, their first step or word is not easy as CP affects the regular things that children do.
Although I still feel "shortchanged" sometimes, as I didnt get to hear Mikaail's first proper word nor taking his first step on his own, I am now better able to understand him through the regular weekends that I spent with him. I'm not sure if it is a blessing though I cant imagine not having him by my side.
Some CP kids go around in wheelchairs and others
walk with the help of crutches or braces. Some may have their speech affected or the person might not be able to speak at all. Mikaail is wheelchair bound after he had stroke. Stroke at 7 is rarely heard of actually and stroke robbed him of his vision, speech and mobility. It's been 4 years now and I still cant understand what the medical team were thinking about when they wanted to save his life without the basic quality of life! A person with CP has trouble controlling the muscles of the body. Our body moves because the brain tells the rest of the body exactly what to do and when to do it. Since CP affects the brain, a person with CP may not be able to walk, talk, eat, eat or play the way most normal children do. This depends greatly on the severity of the damage to the brain and which part of the brain is affected.
Although Cerebral Palsy (say: seh-ree-brel pawl-zee) is a condition that affects thousands of babies and children around the world each year, it is not contagious. You cant catch it from anyone who has cerebral palsy. Cerebral means it has something to do with the brain. Palsy refers to a weakness in a person's movement or the way the body is positioned.
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